Non-Hodgkin’s Lymphoma Advocacy, Education, and Support Groups

The following organizations provide a variety of support programs and educational materials for people with non-Hodgkin’s lymphoma and their family members, caregivers, and friends. However, this is not an endorsement of these organizations and the information they provide. You should always discuss any questions or concerns you have with your health care provider.

American Cancer Society

http://www.cancer.org

Toll-free information line: 1-800-ACS-2345

TTY: 1-866-228-4327

E-mail: http://www.cancer.org/asp/contactUs 

The American Cancer Society (ACS) is a national organization working to eliminate cancer as a major health problem through research, education, advocacy, and service. ACS operates the National Cancer Information Center, a call center that is available 24 hours a day, 7 days a week. The center answers questions about cancer, links callers with resources in their communities, and provides information on local events.

CancerCare

http://www.cancercare.org

Telephone: 1-800-813-4673

E-mail: info@cancercare.org

CancerCare, founded in 1944, is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs–including counseling, education, financial assistance, and practical help–are provided by trained oncology social workers and are completely free. 

Leukemia and Lymphoma Society

http://www.leukemia-lymphoma.org

Phone: 1-800-955-4572

E-mail: http://www.leukemia-lymphoma.org/all

The Leukemia and Lymphoma Society is a voluntary health organization that funds cancer research and provides education and patient services related to leukemia, lymphoma, and other blood cancers. The society’s website offers decision tools for talking to your doctor and choosing a treatment center, a clinical trial service, treatment information booklets, fact sheets, and online discussion boards.

Lymphoma Research Foundation

http://www.lymphoma.org

Phone: 1-800-235-6848 (New York office) or 1-800-500-9976 (Los Angeles office)

The Lymphoma Research Foundation funds cutting-edge research to find a cure for lymphoma and provides programs and services for patients with lymphoma and their families that address treatment issues, research advances, and coping with all aspects of the disease. The foundation’s website offers an online guidebook on understanding non-Hodgkin’s lymphoma for patients, a peer-support program, a free helpline and information service, financial assistance, and patient stories.

National Cancer Institute

http://www.cancer.gov

Toll-free information line: 1-800-4-CANCER (1-800-422-6237)

TTY: 1-800-332-8615

LiveHelp: https://cissecure.nci.nih.gov/livehelp
 
E-mail: http://www.cancer.gov/contact 

The National Cancer Institute (NCI) is a federal agency and a component of the National Institutes of Health. NCI supports and conducts research, training, and education. NCI operates the Cancer Information Service, which answers questions about cancer by telephone, TTY, instant messaging (through the LiveHelp service), and e-mail. NCI’s website includes information about various cancer topics, research, and cancer statistics.

Patients Against Lymphoma

www.lymphomation.org

Patients Against Lymphoma provides support and evidence-based information, without health industry funding, to patients. The organization’s website offers patient stories, treatment tips, links to online support groups, advocacy tools and resources, and lists of lymphoma clinical trials.