Multiple Myeloma Advocacy, Education, and Support Groups

The following organizations provide a variety of programs, educational materials, and other forms of support for people with multiple myeloma, their family members, caregivers, and friends. However, remember that this is not an endorsement of these organizations and the information they provide. You should always discuss any questions or concerns you have with your health care provider.

American Cancer Society

http://www.cancer.org 

1-800-ACS-2345
1-866-228-4327 for TTY

The American Cancer Society (ACS) is a national organization working to eradicate cancer through research, advocacy, and service. Among its many services, the ACS has a call center, which operates 24 hours a day, 7 days a week, to answer questions about cancer and link callers with resources in their communities.

CancerCare

http://www.cancercare.org

Telephone: 1-800-813-4673

E-mail: info@cancercare.org

CancerCare, founded in 1944, is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs–including counseling, education, financial assistance, and practical help–are provided by trained oncology social workers and are completely free. 

International Myeloma Foundation

http://www.myeloma.org 
Toll-free line: 1-800-452-2873 (US and Canada)
Email: TheIMF@myeloma.org

The International Myeloma Foundation is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The website features information about myeloma treatment, research and clinical trials, medical advances, and support and advocacy.

Multiple Myeloma Research Foundation

http://www.multiplemyeloma.org 
Phone: (203) 229-0464
Email: info@themmrf.org

The Multiple Myeloma Research Foundation was founded in 1998 to fund research on multiple myeloma and better ways of treating it. The website features information on multiple myeloma and its treatment, new research, and clinical trials. Several print publications can be downloaded through the site as well.

National Cancer Institute

http://www.cancer.gov 

1-800-422-6237
TTY: 1-800-332-8615
LiveHelp: https://cissecure.nci.nih.gov/livehelp/welcome.asp
Email: http://www.cancer.gov/contact

The NCI is a federal organization and a component of the National Institutes of Health. The NCI’s National Cancer Program supports and conducts research, training, and education. NIC operates the Cancer Information Service, which answers questions about cancer by telephone, TTY, instant messaging (through the LiveHelp service), and e-mail. NCI’s website includes information about various cancer topics, research, and statistics.

Oncolink

http://www.oncolink.org 

Cancer specialists from the University of Pennsylvania founded Oncolink to provide cancer information to cancer patients, health care professionals, and the general public. The website includes information about various cancer topics, coping information, and an "Ask the Experts" section.

The Leukemia and Lymphoma Society

http://www.leukemia-lymphoma.org 

1-800-955-4572

The Leukemia & Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The society’s mission is to cure leukemia, lymphoma, Hodgkin’s disease, and myeloma, and improve the quality of life of patients and their families. The website features blood cancer information, online discussion boards, and information about support programs and patient education workshops.