Laryngeal and Hypopharyngeal Advocacy, Education, and Support Groups

The following organizations provide a variety of support programs and educational materials for people with laryngeal cancer and hypopharyngeal cancer and their family members, caregivers, and friends. However, this is not an endorsement of these organizations and the information they provide. You should always discuss any questions or concerns you have with your health care provider.

American Cancer Society
http://www.cancer.org
Toll-free information line: 1-800-ACS-2345
TTY: 1-866-228-4327
E-mail: www.cancer.org/asp/contactUs

The American Cancer Society (ACS) is a national organization working to eliminate cancer as a major health problem through research, education, advocacy, and service. ACS operates the National Cancer Information Center, a call center that is available 24 hours a day, 7 days a week. The center answers questions about cancer, links callers with resources in their communities, and provides information on local events. 

CancerCare
http://www.cancercare.org
Telephone: 1-800-813-4673
E-mail: info@cancercare.org

CancerCare, founded in 1944, is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs–including counseling, education, financial assistance, and practical help–are provided by trained oncology social workers and are completely free. 

International Association of Laryngectomees
http://www.larynxlink.com/index.htm
E-mail: ialhq@larynxlink.com
Phone: 910/340-4519

The International Association of Laryngectomees (IAL) is an association of 250 member clubs and regional organizations that serve people who have had a laryngectomy. The IAL website offers assistance in finding a speech instructor, a listing of local clubs, tips and FAQs, and links to personal websites of people who have had a laryngectomy.

National Cancer Institute
http://www.cancer.gov
Toll-free information line: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
LiveHelp: https://cissecure.nci.nih.gov/livehelp 
E-mail: http://www.cancer.gov/contact 

The National Cancer Institute (NCI) is a federal agency and a component of the National Institutes of Health. NCI supports and conducts research, training, and education. NCI operates the Cancer Information Service, which answers questions about cancer by telephone, TTY, instant messaging (through the LiveHelp service), and e-mail. NCI’s website includes information about various cancer topics, research, and cancer statistics.

Support for People with Oral and Head and Neck Cancer (SPOHNC)http://www.spohnc.org/ 
E-mail: info@spohnc.org
Phone:  1-800-377-0928

SPOHNC focuses on the emotional, physical, and humanistic needs of patients with oral and head and neck cancers. The organization’s website provides links to lists of clinical trials, teleconference archives, and a list of head and neck cancer support groups in the United States.

WebWhispers
http://webwhispers.org/

WebWhispers provides practical and educational information and support to people who have been treated for laryngeal cancer or who have damaged vocal cords. The organization’s website offers a list of local clubs, information on common concerns, support for caregivers, and moderated e-mail lists.

Yul Brynner Head and Neck Cancer Foundation
http://www.headandneck.org/
Phone: 843-792-6624
E-mail: http://www.headandneck.org/contact_us/

The Yul Brynner Head and Neck Cancer Foundation Inc., provides patient support, research funding, and education. The foundation’s website offers an event list, an online discussion forum, and links to lists of clinical trials.