My Connections: RosesareredCancerisblue

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My Story
I was having problems. Light spotting and I felt bloated. I went in for my normal Pap. A test I never miss or put off. I told my Doctor that this just could not be right. He assured me it was nothing that I was just perimenopausal. I told him it cant be I have been that for 10 years, something is wrong. I told him I have also gained weight and feel bloated all the time. He said that I should have some tests just to make sure nothing was going on. I had an ultra sound and MRI. When he got these results...

 
My Updates
  • October 31, 2009
  • HALLOWEEN

     I am waiting on tests. I need to get a colooscopy, and get pet scans. I also have my sixth month female tests coming up. These tests will tell the tale. I am still weak and I tire easily. But I am slowly getting better. My legs and feet still have pain. So who knows. I fell anxiuos about the results of these tests, and where my life is going from this point forward. It is complicated and full of doubts.

    I would like to wish everyone a wonderful Halloween and good health.

  • October 07, 2009
  • Just tired and sick

     I am not feeling well. I am tired, I hurt so bad. My joints and bones hurt. I feel like I have been hit by a truck. The numbness in my hands and legs bothers me. I feel depressed. Yet I am telling myself I need to be positive , yet I am finding it hard today. I guess we all have these days. I am not getting any help with insurance help, money and I am scared. I am just venting here so please dont mind. It helps to whine. One day this will pass , I wont worry about the cancer or a job or the cost. What this has done to the people I love . I will be healed and be able to have a good job and nice life. I wont be tired or scared. I know we all go through this. I can tell be the stories I read. You would think when we need help the most we would be able to find it. But that doesnt seem to be the case.  I hope we all make it our own way, and that we all find comfort. I pray each day that things get better , not just for me but for many others out there who may have less than I do. Please God protect those who need you most, walk with the ones who are alone, and please let us all know your grace. Amen

  • October 03, 2009
  • last chemotherapy ...I hope

     I had my last chemotherapy, it lasted a little over 8 hours. Boy was I tired after that. The nausea and vommiting was horrible this time around, even with medications. But today it is a little better. I now am going in for the Neulasta shot. After that I get set up for a colonoscopy and Pet scan. I also have to get this anemia worked out. I am always so tired. Some days I find it so hard just to get out of bed. My doctor assures me this will pass and has me on mrdications for this. She has also decided to keep me off work for a while longer. You worry about not taking enough time to heal, and you worry about taking to much that you loose your job. I guess everyone here has had these questions.

    The stress with money doesnt help nor does the stress with family. They are wonderful and when you see your husbands stress and worry you worry over him. As for the rest of the family I have ups and downs. My Father came to visit that was awesome. He came with my Uncle Don, they were both sweet nice and full of life. It was sad to see them go 3 days was such a short time.But then there is my mother in law, I know she doesnt mean the things she says, but it hurts. On her defence she has dementia. But she tells me I am ugly now, not worth anything and I blame everything on chemotherapy. She tells me if she had a knife she would stab my dog and why cant we all just leave her alone. I hear she is this way with certain other family members. What a shame.

    Well now I wait to see if I get the all clear back. I hope all these tests I am about to take are negitive for cancer. I just want to be done. Get some sort of a normal life back. Get to work and start putting my finances back on the good side. Everything is possible, may god grant me this. I pray all the people going through this have this to. hugs to all Pat

  • September 14, 2009
  • once again in the chair

     I just went in for more chemotherapy after a required break. I am not feeling to well have bone pain from the Neulasta shot. I also went and got the flu shot and am on the list for the swine flu shot. I need to get more blood tests to make sure the levels are ok. They have been running very low.

    Money is very tight and stress is high. We have family obligations that are taking a huge toll on us. My husband is always angry and up-set. He tells me often one day its just going to be about him, what he wants to do and to heck with the rest of us. That we have two ares and legs we can get our own things done. Get to our own appointments take care of ourselves. I tell him I love him. He asks me if it is for assurance that I want to hear him say it back.

    I guess we have good days and bad days. I feel I am trying to help as much as I can. But it doesnt seem to be enough. Rick I beleive feels the same way and overwhelmed. He also has his Mothers illness to tend to . We have turned ourselves in side out for this. Both of us. But I do not know where this will end or what in the end this will cost us as a couple. I am scared. But all of us in our lives going through something like this has issues we have to deal with and handle the best we can. I pray to god that we pull through this together stronger, not broken...

  • August 18, 2009
  • More delays

     I went for another doctors visit. Once again the chemotherapy treatments have been put on hold. My blood work is still low , so before they decide to give me a transfusion, they want to wait a few days and do another blood count. Then they will decide what direction to go. I also have developed neuropathy. The doctor hopes this will get better over time. When I start the chemotherapy again my medications will be changed. I am looking at this time as time to get stronger so I can finish chemotherapy and live a long full happy life. Keeping positive isnt always easy , but it is nessesary for me.

Guestbook
jkjones wrote How are you
on 08-07-2009 11:51 PM

 Pat,

I just wanted to let you know that my husband lost his battle with gastric cancer on August 4th. He was so sick. He was in so much pain. The last month of his life was miserable. It was 24/7 care. I feel like half of me is gone. I grieve so much for him. I had a wonderful life with him. We were married for 23 years and have a 20 year old son. I am so scared for my son. It will be so hard for him without his father. I just feel so empty. I have been told that with time it will get better. Right now it doesn't seem that way. Please keep in touch. I know that it will help me to talk to someone.

Love,

Judy from Tennessee

perryswife wrote How are you ?
on 07-24-2009 1:14 AM

I haven't heard from you since you replied to me. I care for my husband who has gastric cancer, this is the least I can do for the one person in this world ( beside our children ) who I would lay down my life for. It's so difficult being helpless as a caregiver. I can't " just make it go away ", and that is so frustrating, all I can do is love and care for him as I know he would do for me, at least that gives me something. You are a lucky woman...yes, lucky, some people have nobody to care for them, imagine how that must feel. Let your husband love you...you would do the same for him, no? 

bigsciota wrote Husbands
on 07-06-2009 2:03 PM

Roses, I pray for you. I understand what you mean about your husband. Through this whole ordeal I have been more worried about my husband than myself. I felt like no matter what I would be okay. I knew that I would either be taken home to spend eternity in heaven or I would recover and be okay. But my husband and children, they were the ones I was worried about. My husband lost both of his parents in a 2 year span, his father had PSP and we knew it was coming. His mother was killed in a head on collision by a drug impaired driver. He had been through so much I just can't imagine him making it through losing me.

I came to realize that taking care of me is so important to him. Women are always the care-takers and as a result it is hard for us to let others be that person. I think it has really helped my husband feel that he has some power over a completely powerless situation. He NEEDS to take care of me and it really makes him happy.  It has strengthened our marriage and we already had a great marriage. Let him take care of you. I assure you it gives him joy to do so. We are both so lucky to have such good men. They are not that common these days.  I am so grateful God blessed me with such an incredible man.

Keep strong! 

Sandy (Norm's wife) Smile

jkjones wrote Hang in there!
on 06-28-2009 3:25 PM

 As you said in your updates, you have to take everyday at a time. My husband has stage 4 stomach cancer, and it is inoperable. I have seen a very strong man just wither away. His outlook looks very bleak, At one time, he was remission and it returned with a vengeance. It is nice to know that you have someone to talk to. It makes dealy with the situation a little easier. Just hang in there and be strong.

Judy(chuck's wife)