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multiple myeloma




Last post 05-03-2008 1:21 PM by linda77. 3 replies.
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01-13-2008 1:39 AM



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Joined on 01-13-2008
Posts 2

multiple myeloma

I am 54 and have multiple myeloma and would like to find others that have been diaganosed.

Would love to talk with someone that has had a bone marrow transplant.

01-18-2008 9:38 AM In reply to



Top 500 Contributor
Joined on 11-08-2007
Posts 5

Re: multiple myeloma

Sharon,

      I was diagnosed in April, 2006--probably had it since 2003. I have not had a transplant however. If you ever want to talk--my Email is jcichocki@tampabay.rr.com. I' m not knowing how to communicate with you on this site; finding  this entry you made was mistake  I think, although I'll try to do it again  Isn't this site wonderful; Getting into our P.M.R. is amazing to me.

                    Karen--age65

02-03-2008 11:48 PM In reply to



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Joined on 02-03-2008
Posts 1

Re: multiple myeloma

Hi Karen, my husband was diagnosed in April 2005. He has a tumor on his spine. His treatment so far has been:

thaliomide; velcade (caused neuropathy) ; revlimid & dexamethasone; now only revlimid, the dex caused too many side effects affecting his quality of life. He is doing well, gained weight, energetic, etc.  I was wondering what type of treatment you are on and your progress.

thanks, sandy b.

 

05-03-2008 1:21 PM In reply to



Not Ranked
Joined on 05-03-2008
Posts 5

Re: multiple myeloma

Sharon

I'm also 54, i have mgus igg lambda. i'm still in shock and probably in denial.

i seem to have many symtoms, shich they say i can't.

hope you well and still checking for you replies

 

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