Caring4Cancer

On July 6 my husband had a 4.4 cm malignant brain tumor removed which was in the left lobe. It was stage 4 glioblastoma multiforms.  I need help and am in a melt down.  He is now in chemo and radiation.  Is there anyone who has first hand knowledge of this situation?  I have never faced anything like this and I am a breast cancer survivor of 14 years.  Boy, do I need support. Thanks.

I am sorr

I don

 and read Lance Armtrong's book, it's not about the bike

 

Here is an excellent website for all brain tumors, I know because I had one. I'm a 6 year survivor. There is a message board there, the Brain Tumor List with extremely knowledgeable people contributing their first hand experience with GBMs. The first question they are going to ask you is if your husband has been seen at a major Brain Tumor Center. Please go to this site. I know that you will receive tremendous help. http://virtualtrials.com/

Thank you so very much!!!! I will indeed visit that website.

Would you be willing to answer some questions for me?  I have a hard time dealing with the many aspects of this disease and what it is doing to my Husband.  Congrats on being a 6 year survivor! 

i was diagnosed with astrocytoma, grade 2 last january. surgery can't be done due to the location of tumor. i went thru radiation and have been getting chemo for the last severy months on a weekly basis. doctors gave me only months to live, but here i am starting year number 2, so i have mixed emotions. everyime my head hurts, i think..here it comes, the end.....but i believe doctors just guess the time. i am an emotional wreck.i had to quit my job, stay home, my left side is extremely weak. i stay mostly at hone, watching television, feeling bad for putting my husband through this. i am 54 yrs old. 

I did not even see your messge posted before today.  Please post the message again. It starts with MyPete wrote the following post ........   Thanks.  Psalm42

I never saw your message before today. Would you please post the message again?  I certainly do appreciate your replying to me. Thanks,  Psalm42

Thank you for replying to my message.  My husband is currently doing very well.  He is taking the chemo 7 days on and 7 days off and so forth.  The dosage is much lower than before and he is doing well.  We have found that his mental capacity is on the down swing and is on on Ritalin.  He is up to 5 pills a day and is doing well.  It makes him concontrate and gives him energy at the same time.  Presently, he is working a four hour shift 5 days a week and doing well.  Maybe that is something you could discuss with your doctor.  I know first hand just how frustrating and depressive this disease can be.  No, I agree with you that the doctors do not have all the answers.  But we do have a great medical team and we do trust their judgments.  We also read and use the internet for research.  At times, I have had to stop doing this, as it is just too much.  Are you affiliated with any support group or chruch?  They are sources for alot of help.  We know that God is in complete control of this sitatuion and we trust him.  Some days it is hard but we never waiver in that belief.  We also know that each day is a gift of life.  What is your source of strength?  I know it is hard to concentrate on anything some days, especially when you don't feel good and have no support system.  Please greet each new day with a smile and a thank you.  Do the best you can and be sure to tell that husband of yours Thank you??? Psalm42