Two weeks ago we thought my husband Everett was having a heart attack. I rushed him to the local ER and instead they found what they told me was a "large mass" in his heart. They performed open heart surgery a week later and were able to remove 80% of the tumor - which the Doc says was the size of a mans fist. They now have given this thing a name and are calling it an "Angiosarcoma". Cancer of the heart. Our first consultation with the oncologists will be on 8/21. From there, the plan is hospitalize him for four days a month for the next five months for Chemo. They call this a continuos infussion, and tell me it is the most aggressive form of chemo they can do for him. Radiation was also mentioned, but not further discussed yet. Does anyone have any information regarding this? I feel as if I've been sucker punched. Any support/information would be most appreciated.

Dear EvsGirl, I am very sorry to hear about what you and your husband are going through. At the same time, I am relieved to hear that he made it through his very complex, difficult surgery and hope his recovery is proceeding well. As I imagine you understand by now, the kind of angiosarcoma you describe is very rare. It is difficult to give specific recommendations about his condition or treatment options without knowing many more details about your husband's situation. I encourage you to do all you can to make sure that he will be seen and treated by oncologists who are knowledgeable about and experienced with his type of cancer. Also, remember that while your husband's body is certainly in a crisis right now and needs focused care and attention, so do his mind, heart and spirit (and yours). So, while you are sorting through the many important medical decisions and logistics of his care, you might find it helpful to explore The Seven Levels of Healing material on this website. The Seven Levels program provides a clear overview of the cancer journey, as well as practical suggestions for navigating the journey as skillfully and effectively as possible. I am sending you and your husband my best wishes.