Caring4Health Community

Help from Chicago

Leanne — Tue, 17 Nov 2009 12:26:32 GMT

I was diagnosed in 2008 Stage IV Lung Cancer that has metastisized to the spine. Got word yesterday it is getting bigger and spreading more. I need to eat better. I hate to cook. How could I get my mind focused on cooking better?

BRCA1

Angi — Wed, 28 Jan 2009 15:28:39 GMT

I would like to know if there anyone who is positive for BRCA1 gene and facing a double mastectomy in the near future. I would like to know what to expect with reconstruction.

Also, maybe some advice on what to expect with the first chemo treatment.

Angi

Stage 4 lung cancer

Darleen — Mon, 12 Oct 2009 17:39:48 GMT

I have been diagnosed with stage 4 lung cancer that has spread to my neck bones. I've undergone 3 chemo sessions in 3 months and have had radiation to my neck. I have another chemo session tomorrow after having a week off. Has anyone else had similar sessions? Is it possible to survive stage 4 lung cancer and if so, for how long? My doctor gives me a year and so far my tumor has diminished is size as has the surrounding cancer. I'm on Carboplatin, Avastin, Taxotere in addition to having emphysema.

breast cancer

teacher55 — Wed, 04 Nov 2009 23:57:04 GMT

I was just told I have breast cancer recurrance in the left lung...very close to the originial site...I had breast cancer 18 years ago...I was so comfortable thinking I was a suvivor that the thought of a recurrance was not in my thoughts at all...now I had my first PET scan...a gentic work up ...and markers being taken...I see the dr. Friday for the treatment plan...worried...yes I am...not sure what to expect...he did mention a pill femara I think that is the spelling...but needed to know if estrogen is involved...I had a hysterectomy in 94...where would the estrogen come from...?Teacher55

Michael Muhney of The Young & The Restless

onyx78 — Thu, 17 Sep 2009 19:24:07 GMT

I found the new LA Cancer Challenge Video on You Tube feat. Michael Muhney
of Young and the Restless Fame! What do you think? Like it?
http://www.youtube.com/watch?v=kONjAhZGQb0

Chronic T-Cell Large Granular Lymphocytic Leukemia-LGL

sarasotap — Wed, 27 May 2009 23:23:39 GMT

I am 31 years old with chronic t-cell large granular lymphocytic leukemia and was just wondering if anyone else has the same or something similiar, just wanted to touch base...Thanks, Michelle

One breast mastectomy

sassysurvivor — Sun, 04 Oct 2009 01:53:51 GMT

Looking for thoughts on coping. I have IDC of the right breast. I did chemo first and then on September 29 I had a modified radical mastectomy of the right breast with axillary disection. The surgery went really well with good clean margins. Then of 27 nodes only 4 were cancer. I'm thankful for that.

I will have radiation so I did not have reconstruction. I'm looking at living with one breast for at least 6 months maybe more. I am a large breasted woman (DD) I do not have a prostheses yet so I am using a foam form right now. I can't get comfortable and get the two sides to look equal. This causes my to panic and I have a lot of axiety about going out in public.

Any thoughts on coping? Does anyone else find they have axiety atacts when in public?

CML pt

Cheryl201 — Tue, 13 Nov 2007 15:40:35 GMT

This is Cheryl in Chicago, diagnosed with CML in 2004. Currently under control with Sprycel. Any CML patients out there?

My step dad was diagnosed with CML last year. I need info

jibanez87 — Thu, 20 Aug 2009 22:43:17 GMT

Like the subjects states my step dad was diagnosed with CML last yaer in march. he is now 43. We are latino, Mexican to be exact.They perscribed him gleevec 400mg. The cancer was stable. his white blood count was at 10,000 earlier this week my mom received a call from the doctor notifying her that his count had jumped to 19,000. So they will now pescribe him 600mg of gleevec. I have so many questions to ask but i dont have access to speaking with his doctor. and my mom just doesnt know what questions to ask. i want to help all i can so i am trying to inform myself as much as possible. I have read that people's white blood cell count jump as high as 100,000, so how serious is a jump to 19,000. What is more important the white blood cell count of the % of blast cells in the blood? Also, i read on cancer.org and cancer.gov that stem cell transplant is the closest to a cure available. Has anyone gone through this procedure? and how has it worked for you? I am also aware that there is 3 different stages to this disease. Any other infomation or help, or maybe questions i should have my mom ask the doctor. ANY info or help with greatly be appreciated. I THANK EVERYONE IN ADVANCE FOR ALL THE HELP. God bless you all

Juan

Breast cancer

captnana — Sat, 25 Jul 2009 11:41:33 GMT

I was diagnosed with breast cancer on February 23 and had a lumpectomy (large) on Mar 3. I have been getting chemo since then and was told I had a Triple Negative Breast Cancer. This week, I went to get my pathology reports and I received a shocker. I had two types of cancer cells (comedo and cribriform) on the report and that it had invaded from the duct into the stromal. I was never told any of this, I was told I had DCIS. I am getting Cytoxan, Taxotere and Neulasta and I would like to be sure these drugs are what I need to prevent a return of the cancer. The doctors told me they are giving me what they think is the best treatment, since they aren't sure how to treat my kind of cancer. Is there anyone out there who has the same problem I have? Pleas help me if you can. Thanks.

Concerned

GrammyB — Thu, 17 Sep 2009 17:02:01 GMT

Hello,

I'm new here and was diagnosed with bc in June. Had a bilateral mastectomy in July and have just started chemo. Had my first treatment 2 weeks ago. I had most of the side effects except the mouth sores, but am doing great now. My concern is this: I was laid off from my job in March and diagnosed in June. I have been looking for a job but folks seem to not want to hire me. I'm not sure if the reason is the cancer, or if it's other reasons. I find myself getting rather depressed over all of this since I have run out of money, have no prospects for a job, and am 50 years old. I would really like to work, but just cannot seem to get one. Has anyone else had this problem?

Thanks for any help...

Grammy B

This Cancer

RosesareredCancerisblue — Sun, 27 Sep 2009 13:21:59 GMT

This cancer I have , that has been removed from my body and looked at. It has been said that this tomor I had inside of me is one of a kind. I dont know about that, but the doctors are going to write about it in the AMA journels. The tumor has several types of cancer cells all very agressive. I was told that my cancer memics ovarian cancer. So I have had to go through the same cancer protocal for that type of cancer. The chemotherapy and radiation.

If anyone else has something like this , please let me know how you are doing. May god grant us all health, wisdom, friends, ways to make our finances reach and a since of humor .

I feel lucky . I knew my body well enough to know something was wrong and when my family doctor told me it was just peri-menopausal sylptoms, I kept pushing. It may have saved my life! Only time will tell, but it looks good....

Admin test

admin — Fri, 11 Sep 2009 19:56:16 GMT

This is a test from adminstrator. please ignore it.

Thanks,

Admin

After-effects of I-131 Iodine Radiation Treatment

tazzjazz — Mon, 01 Oct 2007 00:33:56 GMT

I was recently diagnosed with thyroid cancer, had surgery to remove the entire thyroid, and then had the I-131 Iodine ratiation treatment. This was at the end of August, and I'm still having problems with my sense of taste. I have a salty, metallic taste in my mouth, and can't really taste most foods. I can taste mint, but other than that, most everything else is just blah.

Has anyone else experienced this, and if so, how long does it last? I'm hoping it's not permanent!

Right after the treatment (within 2-3 days), my tongue felt like it had been scalded, and then my mouth got really sore. My dr gave me a 3-day prescription of furosimide (I think that's what it was), and it helped somewhat, got rid of the soreness, but the taste issue is still there.

I appreciate any info, because I really can't find anything about this in any of the information articles.

Thanks!

Medullary Carcinoma / Thyroid Cancer

Josie — Fri, 11 Sep 2009 12:54:20 GMT

It seems that nobody has been sharing experiences on this site about this rare kind of thyroid cancer... Therefore, I would like to start a new Message Board about thyroid cancer and the diverse forms it can take...

I have been diagnosed one year ago with medullary carcinoma, underwent surgery, radiations and now chemotherapy...

I am looking forward to share experiences and treatments with other afflicted with with rare cancer.

Josie

Message from Dr. Jeremy Geffen

DrJeremyGeffen — Thu, 14 Jun 2007 07:04:23 GMT

Welcome to the Seven Levels of Healing Message Board! I am happy and excited to inaugurate this wonderful resource for patients and loved ones who are navigating the journey through cancer. As an oncologist -- and as someone who has experienced cancer directly in his family -- I understand how important it is to find timely and meaningful answers to your questions, and to be able to reach out and connect with others. I am curious to hear your questions, and your stories. Please share them freely. Let us know how Caring4Cancer can best support you on your journey. I look forward to hearing from you. With warm regards, Jeremy Geffen, MD

Myxoid Liposarcoma

duffyamy — Sat, 26 Jan 2008 19:23:29 GMT

Hi,

This is the 1st time I have seen this web site and it is awesome! There is not a lot of info out there about sarcomas. My husband was initially diagnosed in March of 2002. After having 2 surgeries and radiation on his left thigh he was "clear" for 4years!! At his CT scan in July of 2006 they had found the cancer had metastisized to the lungs. At that time at MRI was also done and found 11 tumors on the spine. At this point we transferred all records to the Mayo Clinic in Rochester, MN. The first step was radiation to the spine involving the worst area. After that chemotherapy was administered. Three months of chemo and things were looking good! He went 10 months with out any further signs or symptoms. This last October they could see the tumors were back in the lungs. So we started another round of a different chemotherapy, Gemzar and Taxotere which did nothing for the tumors. In fact they had doubled in size. This last week another chemptherapy was started Ifosamide and Etoposide. The first round and this last round have been by far the worst for side effects! The second round of the Gemzar and Taxotere were the easiest for him.

I know how frustrating all of this can be, because of its rarity! There just isn't a lot of info out there about this type of cancer. And what I have found is very negative and depressing!

Anyone out there that would like to share stories, I would love to hear them! We all need each other to get thru this aweful disease! Sometimes I think the caregiver is more negatively affected because of the unknown!

I look forward to hearing from some of you!

Lymphedema

lilyofthevalley63 — Sun, 16 Aug 2009 03:32:08 GMT

I had a mastectomy last November and so far do not have lymphedema. There is a new study showing that weight lifting helps those who do have it. I am wondering if it might also help prevent it. I was told that I should wear my compression sleeve whenever I use my arm a lot such as for skiing or playing golf. But when I wear it for more than a few hours it seems to cause my hand to swell up a bit, perhaps from the restriction. Does anyone know if wearing the sleeve also helps to prevent lymphedema?

Small Bowel Adenocarcinoma

BettyAnn — Thu, 20 Aug 2009 14:29:09 GMT

My husband has just been diagnosed with the rare small bowel (jejunum) adenocarcinoma. Just searching for someone/anyone that may have experience with this same type of cancer. This Colorectal Cancer board is about as close as I can some.

Thanks for listening,

B.A. (wife) of Jack - Minnesota, MN

Metastatic Breast Cancer

Diandanner — Fri, 19 Jun 2009 20:37:24 GMT

Is anyone out there dealing with metastatic breast cancer? I have been on various chemos for the last 3 years with mets to the bones, lymph nodes and liver, and the cancer seems to progress a little more with each Pet Scan. I can find no support groups for metastatic breast cancer. I so want to talk to others who are going through this.

Thanks, Dian

Welcome To Erectile Dysfunction Forum

admin — Thu, 22 Nov 2007 01:29:32 GMT

Welcome to Caring4Urology's new online community!
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I'm on Remicade

rlsjms — Tue, 14 Jul 2009 14:00:20 GMT

I have been on Remicade infusions since July 2005, 6 months after both hips were totally replaced.

Infusions going well, not had any reactions from it. Is anyone else currently reciving remicade infusions for remicade? how is it going?

I also have osteoarthritis, too bad remicade dosen't take care of that too!! all i can do for that is pain meds, heat, ice, creams..........

The fibromyalgia i have is just insult to injury, take cymbalta for that and it gives me some relief.

would love to hear comments/things you've tried to get some pain relief for osteo and fibro. thanks. janet

Prostate cancer treatment to choose

cheweedog — Tue, 12 Feb 2008 17:39:19 GMT

the goal

RosesareredCancerisblue — Sun, 28 Jun 2009 15:36:25 GMT

I guess the thing for me is to remind myself of my goals. To become cancer free. To take each radiation treatment and chemotherapy session as one more step to my end goal. Yes there is pain but with that I am closer to healing. I try to keep active when I am up to it. I dont beat myself up when I cant do something I used to do. It will come back in time. Yes I worry but then again who wouldnt in our shoes. It is a natural thing . I try to focus on the little things. Like the muffins I bake for my Mother-in-law, or the flowers I planted in my flower pot. These things help me forget for awhile, and enjoy what I have more. I still have moments , so I have to keep telling myself that I am strong and to hang in there. I know in my heart faith is the key. I am lucky in so many ways. I at times forget these things. I guess we all do at times. I am thankful for the times when I realize that even going through this I am loved and lucky. I am also hopeful .

Head and Neck Cancers

davidhartwell — Fri, 28 Nov 2008 07:17:03 GMT

Hello I'm David. In September of 2007 I underwent a right parotidectomy, but declined the recommended follow up radiation therapy. In October of 2008 I presented a mass at my right jawline that was confirmed a recurrent carcinoma. A right modified radical dissection was performed and follow up radiation therapy was recommended. I must make a decision very soon about whether or not to do the radiation. Is there anyone out there with an experience similar to mine who would be willing to share their experience with me?