Chronic Lymphocytic Leukemia Advocacy, Education, and Support Groups

The following organizations provide a variety of programs, educational materials, and other forms of support for people with chronic lymphocytic leukemia, their family members, caregivers, and friends. However, remember that this is not an endorsement of these organizations and the information they provide. You should always discuss any questions or concerns you have with your health care provider.

American Cancer Society

http://www.cancer.org

1-800-ACS-2345 (toll-free information line)
1-866-228-4327 for TTY

The American Cancer Society (ACS) is a national organization working to eradicate cancer through research, advocacy, and service.  Among its many services, the ACS has a call center that operates 24 hours a day, seven days a week, to answer questions about cancer and link callers with resources in their communities. 

CancerCare

http://www.cancercare.org

Telephone: 1-800-813-4673

E-mail: info@cancercare.org

CancerCare, founded in 1944, is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs–including counseling, education, financial assistance, and practical help–are provided by trained oncology social workers and are completely free. 

M. D. Anderson Cancer Center

http://www.mdanderson.org

1-800-392-1611 (USA)

Department of Leukemia

http://www.mdanderson.org/diseases/adultleukemia

713-792-7305

Leukemia Insights

http://www.mdanderson.org/publications/insights

The Leukemia Department at M. D. Anderson Cancer Center offers multiple research-based programs with new agents or strategies in ALL.  Their programs are updated on the above websites.

National Cancer Institute

http://www.cancer.gov

1-800-422-6237
TTY: 1-800-332-8615

The NCI is a federal organization and a component of the National Institute of Health. The NCI’s National Cancer Program supports and conducts research and distributes cancer information.  The website includes information about various cancer topics, research information, and cancer statistics. The website also includes a description of the NCI's initiative to eliminate cancer death and suffering by the year 2015.

Oncolink

http://www.oncolink.org

Cancer specialists from the University of Pennsylvania founded Oncolink to provide cancer information to cancer patients, health care professionals, and the general public.  The website includes information about various cancer topics, coping information, and an “Ask the Experts” section.  

The Leukemia and Lymphoma Society

http://www.leukemia-lymphoma.org

1-800-955-4572

This society funds research, education, and services involved with blood cancers.  The website includes blood cancer information, online discussion boards, and information about patient support programs, such as patient education workshops.